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Friday’s doctor visit

January 26, 2008 By 2 Comments

    Today was a hard day at the doctor’s office.  Jamie didn’t look so good today.  He was kind of pale and had huge circles around his eyes.  The nurse said that he was having stridor today in his breath sounds.  That isn’t a good thing to have, it means there are some breathing issues.  We took [...]

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Dealing with “friends”

January 26, 2008 By Leave a Comment

    I am writing something that will be posted very soon.  It is just a hard thing to post because it isn’t that great of news and I can’t seem to get thru the post with out crying so I am going to have to wait until tomorrow to finish it.      I was just [...]

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One more trip tomorrow

January 23, 2008 By Leave a Comment

We have another trip to Charlottesville.  Jamie has to see the Neurosurgeon tomorrow to get the results from this head MRI.  They called last week and told us that there didn’t appear to be any changes from the last MRI of his head but I really do want to know what those results are.  I [...]

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MRI News

January 17, 2008 By Leave a Comment

    Well, the hospital called today.  They said that the MRI showed that there was more tissue wrapped around his airway but there was no new mass there.  That it had “grown” but that for right now all they would do would be to watch it and get another MRI in the future.  They said [...]

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Short Post

January 15, 2008 By Leave a Comment

I am just posting to let those that are checking back about Jamie to let you know that we don’t know anything yet.  This waiting is just awful.  Part of me wants to know now and the other part of me would be ok to wait a month.  I want to know now if it’s [...]

Filed Under: My Son's Illness

MRI Today

January 14, 2008 By 1 Comment

Jamie had his MRI today.  When we first got there and they were checking him in they said that they were only doing the MRI of his head and spine.  I told them about the chest part being added on last week and they didn’t know about that.  They had to page Jamie’s surgeon, Dr. [...]

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MRI tomorrow

January 13, 2008 By Leave a Comment

As everyone knows, Jamie’s MRI is tomorrow.  I am nervous and I am sure that I will not sleep well tonight.  I am not sure why I am nervous about tomorrow because the actual test is not a big deal nor will we know anything tomorrow either.  I am not sure how many days it [...]

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Jamie’s Surgery Today

January 8, 2008 By Leave a Comment

    Jamie had surgery today.  The surgery went well.  There were no surgical complications and he woke up pretty quickly.  However, we got some bad news again today.  Jamie has a tumor (Neurofibroma) wrapped around his trachea and has been compressing his airway shut by about 25%.  It has been this way for many years.  [...]

Filed Under: My Son's Illness

Doctor’s appointment 01-07-08

January 7, 2008 By Leave a Comment

Jamie had a hearing test today.  I kind of thought I would know what the results would be but there is still this hope that you are wrong and that what you think you are noticing…. is just your imagination.  His right ear is in normal range and his left ear is not.  Part of [...]

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Happy New Year

January 1, 2008 By Leave a Comment

Happy New Year!!! Just wanted to wish everyone a very HAPPY NEW YEAR!  I have a feeling that 2008 is going to be GREAT!!!     I wanted to thank all of you that have been reading my posts.  I am adding a few new topics.  I am going to also post some about my oldest [...]

Filed Under: Current News