Jamie is going in the hospital today

Please say a prayer for him that tomorrow goes well and he has a speedy recovery! Thank you! Twitter This Usuario: Password:

Going in Hospital day after Christmas

Well, Jamie has to go in to the hospital the day after Christmas. The day after that he is having surgery on his airway like normal… ugh.. surgery normal??? Anyway, he has to have part of his sternum either removed or shaved down and then he said he is going to have to take 2 [...]

More Surgery Coming

Well it looks like Jamie is going to have to have more surgery in the future. His next is scheduled on the 2nd of August and we have to talk about removing the large “tumor” from the inside of his airway. The doctor said that it could be something that they laser back some or [...]

What is Neurofibromatosis?

Welcome.  I am going to spend a few minutes talking about my son’s disease.  He has Neurofibromatosis Type 1.(www.nfinc.org) If you click on the link above you can read a lot of information about Neurofibromatosis Type 1 and Type 2 is there too.  There is way more information then I can write on here.  I [...]

Dealing with Guilt

How do you deal with guilt, even though in your heart you know you did what was right?  I imagine some of you are asking, then why the guilt?  Why are you feeling guilty if you did something you know was right to do?  Well, I got rid of another nurse this past week. It’s [...]

The nursing delima… when a nurse is bad

I have had a horrible time over the last week. What you are about to read is something that I didn’t think would ever happen in my home and surely not by the person that did these things. What you are about to read is completely 100% true. About a month ago or a little [...]

Nurses

I have been having some problems dealing with the stress of having the nurses here.  I guess I had gone so long without them I am having a hard time adjusting to them being here again.  I just had to get rid of the nurse that was working at night because she would be down [...]

What is PTSD?

I have been asked many times over the years how do I manage to keep it all together and stay so strong. Well, I have to admit that there are times that I am not so strong. I have days just like anyone else that make me scared and wonder how I can manage to [...]

Common Drugs Explained

Parents hope their teens will steer clear of taking drugs. For some teens, however, steering clear is not an option any longer because they’re hooked. If you’re concerned about the possibility of your teens taking them, here are the most common drugs explained, so you know what you’re up against should your child or teen [...]

Child Development Center

Well, Jeremy went to the CDC today. He had a bunch of tests, but didn’t get finished with them. We have to go back just before Labor Day to get one more set of tests and the results from the tests today and hopefully that one too. I also had to take Jamie to the [...]