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Jamie is going in the hospital today

December 26, 2011 By Leave a Comment

Please say a prayer for him that tomorrow goes well and he has a speedy recovery! Thank you! Twitter This Usuario: Password:

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Going in Hospital day after Christmas

December 17, 2011 By Leave a Comment

Well, Jamie has to go in to the hospital the day after Christmas. The day after that he is having surgery on his airway like normal… ugh.. surgery normal??? Anyway, he has to have part of his sternum either removed or shaved down and then he said he is going to have to take 2 [...]

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More Surgery Coming

July 7, 2011 By Leave a Comment

Well it looks like Jamie is going to have to have more surgery in the future. His next is scheduled on the 2nd of August and we have to talk about removing the large “tumor” from the inside of his airway. The doctor said that it could be something that they laser back some or [...]

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What is Neurofibromatosis?

January 11, 2011 By 4 Comments

Welcome.  I am going to spend a few minutes talking about my son’s disease.  He has Neurofibromatosis Type 1.(www.nfinc.org) If you click on the link above you can read a lot of information about Neurofibromatosis Type 1 and Type 2 is there too.  There is way more information then I can write on here.  I [...]

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Child Development Center

August 19, 2009 By Leave a Comment

Well, Jeremy went to the CDC today. He had a bunch of tests, but didn’t get finished with them. We have to go back just before Labor Day to get one more set of tests and the results from the tests today and hopefully that one too. I also had to take Jamie to the [...]

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In UVA Hotel

August 12, 2009 By Leave a Comment

Here we are… Just waiting for Jamie to have surgery again tomorrow. It’s amazing. It has been 4 months this time! Last time they painted the inside of his airway with a Chemo medicine (I have the name written down on a paper in the car that I will have to get later). I think [...]

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A few days later..

September 25, 2008 By Leave a Comment

Jamie finally started talking last night at about 9:45pm. He was so glad that he could talk. He has been sick and can’t stay out of the bathroom. I don’t know why this happened this time and last time but he is recovering faster than he did last time, I think. He feels great now, [...]

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Night of Surgery

September 24, 2008 By Leave a Comment

Well he had his surgery today. He was in there for about 2 hours again. We got good news in the respect that nothing has worsened. Nothing is better but nothing is worse either and that is considered to be good news around here. There is a little bit of bad news. Jamie can’t talk [...]

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Bronchoscopy Tomorrow

September 22, 2008 By Leave a Comment

Well, here we are in the hotel again, awaiting his surgery tomorrow.  This sure does get hard to do sometimes.  Not so much the surgery, because he will be fine and when he wakes up there is a little pain but can be controlled easily, there is quite a bit of blood that comes from [...]

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Hi to everyone

April 13, 2008 By Leave a Comment

Things are going along well here.  I hurt my back last week and didn’t do much this week.  The last two days I have been working on cleaning the house and getting some things done around the house.  We haven’t been in our apartment that long and it seems that a lot of “stuff” hasn’t [...]

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