Hi to everyone

Things are going along well here.  I hurt my back last week and didn’t do much this week.  The last two days I have been working on cleaning the house and getting some things done around the house.  We haven’t been in our apartment that long and it seems that a lot of “stuff” hasn’t [...]

Surgery today

Jamie had surgery today.  We got some pretty good news.  He had a hard time when he was waking up.  His chest kind of caved in and he turned blue and his saturations dropped to the low to mid 80′s.  He was almost biting on his tongue and he really scared me.  On the way [...]

Surgery tomorrow

Jamie is having surgery tomorrow.  We are here at the hotel near the hospital.  They give us a special hospital rate (a lot of the hotels around here do that since this is a college/teaching hospital city).  It helps that my honey works down here.  Jamie just loves seeing him when we come here.  He [...]

Good News

    We went to see the doctor this Thursday and I am very happy.  He said that Jamie will most likely have the trach for a LONG time if not forever but that the tumors aren’t quite as bad as we thought.  He said that there is extra tissue there and it is being compressed [...]

We go to UVA again

We have to go to UVA again on Thursday to see the surgeon about scheduling Jamie’s next surgery and follow up from the last one.  In the next month we already have 3 scheduled and will be making the surgery the 4th.  The last one is in March (5th) but from Feb 7th that is [...]

Friday’s doctor visit

    Today was a hard day at the doctor’s office.  Jamie didn’t look so good today.  He was kind of pale and had huge circles around his eyes.  The nurse said that he was having stridor today in his breath sounds.  That isn’t a good thing to have, it means there are some breathing issues.  We took [...]

One more trip tomorrow

We have another trip to Charlottesville.  Jamie has to see the Neurosurgeon tomorrow to get the results from this head MRI.  They called last week and told us that there didn’t appear to be any changes from the last MRI of his head but I really do want to know what those results are.  I [...]

MRI News

    Well, the hospital called today.  They said that the MRI showed that there was more tissue wrapped around his airway but there was no new mass there.  That it had “grown” but that for right now all they would do would be to watch it and get another MRI in the future.  They said [...]

Short Post

I am just posting to let those that are checking back about Jamie to let you know that we don’t know anything yet.  This waiting is just awful.  Part of me wants to know now and the other part of me would be ok to wait a month.  I want to know now if it’s [...]

MRI Today

Jamie had his MRI today.  When we first got there and they were checking him in they said that they were only doing the MRI of his head and spine.  I told them about the chest part being added on last week and they didn’t know about that.  They had to page Jamie’s surgeon, Dr. [...]