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Child Development Center

August 19, 2009 By Leave a Comment

Well, Jeremy went to the CDC today. He had a bunch of tests, but didn’t get finished with them. We have to go back just before Labor Day to get one more set of tests and the results from the tests today and hopefully that one too. I also had to take Jamie to the [...]

Filed Under: My Son's Illness

In UVA Hotel

August 12, 2009 By Leave a Comment

Here we are… Just waiting for Jamie to have surgery again tomorrow. It’s amazing. It has been 4 months this time! Last time they painted the inside of his airway with a Chemo medicine (I have the name written down on a paper in the car that I will have to get later). I think [...]

Filed Under: My Son's Illness

What’s New this week

April 6, 2009 By Leave a Comment

Hello there. I am just sitting here waiting for midnight so that I can sign up for summer and fall classes for this year. I am really hoping that I can get all of my RN classes done by next fall (2010) and be in either the RN or the LPN program and be done [...]

Filed Under: My son's Nurses, Parenting

The last few weeks

December 27, 2008 By Leave a Comment

Well, I have to say the last few weeks have been great, emotional and painful. Let’s start with the painful part. My foot has really been hurting a lot since September. I hurt it while moving furniture from the basement apartment when we moved back upstairs with mom. I quit moving for a few days [...]

Filed Under: Trach Care

Trip to the doctor this week

December 6, 2008 By Leave a Comment

I stumped my toe back in September of this year when I was moving furniture upstairs. It really hurt when I did it and has been hurting on and off since. I have stumped my toe again several times, the last of which was this past weekend. Monday when I took Jamie to the doctor, [...]

Filed Under: Medicine & Doctors

A few days later..

September 25, 2008 By Leave a Comment

Jamie finally started talking last night at about 9:45pm. He was so glad that he could talk. He has been sick and can’t stay out of the bathroom. I don’t know why this happened this time and last time but he is recovering faster than he did last time, I think. He feels great now, [...]

Filed Under: My Son's Illness

Night of Surgery

September 24, 2008 By Leave a Comment

Well he had his surgery today. He was in there for about 2 hours again. We got good news in the respect that nothing has worsened. Nothing is better but nothing is worse either and that is considered to be good news around here. There is a little bit of bad news. Jamie can’t talk [...]

Filed Under: My Son's Illness, Pictures

Bronchoscopy Tomorrow

September 22, 2008 By Leave a Comment

Well, here we are in the hotel again, awaiting his surgery tomorrow.  This sure does get hard to do sometimes.  Not so much the surgery, because he will be fine and when he wakes up there is a little pain but can be controlled easily, there is quite a bit of blood that comes from [...]

Filed Under: My Son's Illness

Over reaction???

August 11, 2008 By Leave a Comment

I had a problem this last week.  We lost Jamie’s night nurse.  The week before last, I found my nanny cam and decided that I would put it in Jamie’s room.  I figured that when there isn’t a day nurse and I haven’t had a whole lot of sleep I could turn it on and [...]

Filed Under: Nurses

Recent Days

August 7, 2008 By Leave a Comment

We went to court on Monday, Aug. 4th.  They boys are going to start going back with their dad every other weekend and he is allowed to see them on Wednesday nights for three hours.  I don’t know how that will go, so far the boys say that their dad is good and isn’t hurting [...]

Filed Under: My son's Nurses
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